During the lame-duck session of Congress, members of the Safe Step Coalition will be launching a comprehensive outreach campaign to pressure Congress to include the Safe Step Act in one of the legislative packages that will be voted on before the end of the year. This toolkit provides resources you can use to promote this…
By: Matt Werbach In 2018, when psoriasis lesions began to show on Seritta Frazee’s face, she decided it was time to take her disease seriously and to find the right treatment. Before then, she’d gotten away with covering her skin, but no one wants to live life in a ski mask. With some other diseases…
Legislation puts common sense guidelines around insurance industry practice of “step therapy” WASHINGTON, D.C. – April 13, 2023 Today, patient and health care provider groups from across the country applauded the reintroduction of legislation aimed at putting reasonable parameters around the insurance industry protocol known as “step therapy” or “fail first”. The bill (S.652) is…
Our volunteers made waves visiting Congress and learning firsthand how elevating the patient voice can make a real difference. NPF’s annual Capitol Hill Day is one of the most rewarding and productive events held each year by the Advocacy department, and this year’s event was no different. Advocates from our patient and researcher communities met…
A group of eager volunteers descends on Congress for our 14th annual Capitol Hill Day Fly-in. On Sunday, March 18, 24 volunteers from 16 states along with six doctors and scientists arrived in Washington, D.C., to prepare for our annual trip to Congress. Our dual mission: to persuade our elected representatives to devote more funding…
You may not be able to attend our biggest advocacy event of the year, but you can still participate. Raise your voice as we push for legislative support on key issues. On March 20, more than 30 advocates – patients, health care providers and researchers – are heading to Capitol Hill to raise awareness and…
On June 22, the Senate released its long-awaited health care bill to repeal much of the Affordable Care Act. Known as the Better Care Reconciliation Act, it has a number of components that are similar to the American Health Care Act from May. Senate leadership has a desire to vote on this bill during the…